13-year-old girl born with rare intestinal disease is surprised with Halloween party

At just 13 several years outdated, Kyree Beachem has currently been via so substantially in her youthful daily life.

When she was born, doctors diagnosed Kyree with Hirschsprung’s illness, a scarce intestinal disorder, and ever considering that she has put in her lifetime in and out of the medical center.

“I was fairly sick,” Kyree advised “Good Early morning The us.” “I could not do a large amount of stuff, I couldn’t consume, I could not drink, I couldn’t swim, I could not experience a bike… I couldn’t do the stuff that usual kids did.”

We strike a minimal bump in the highway on Friday. Kyree was admitted immediately after getting to be dehydrated and her liver numbers had been…

Posted by Kyree’s Aspiration Group on  Sunday, September 13, 2020

Additional: TikTokker brings awareness to scarce condition with viral video clips

In accordance to the Mayo Clinic, Hirschprung’s disease is a “situation that affects the big intestine.” The issue is present at beginning due to lacking nerve cells in the muscle tissue of the baby’s colon, earning it difficult to digest meals.

“Whenever she would check out to take in or want to consume, she would have substantial belly ache, significant belly agony,” mentioned George Mazariegos, MD, the main of pediatric transplantation at UPMC Kid’s Medical center of Pittsburgh.

Kyree, who is amongst five adopted youngsters in her family of 10, had her very first organ transplant at 3 several years old, but however, her system turned down it. So whilst awaiting another, she acquired her diet by means of an IV, which was concealed away in a pink backpack that she carried about, since she experienced to be hooked up to the IV for 22 several hours a day.

Kyree is possessing a minimal little bit rougher working day but it was definitely brightened by a offer from a group of girls from…

Posted by Kyree’s Desire Workforce on  Tuesday, August 25, 2015

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And due to the fact she was so ill, Kyree missed several milestones and occasions: birthdays, vacations, family gatherings.

“It was probably just one of the scariest moments of our existence,” reported Kyree’s mother, Nan Beachem, who recalled how difficult that time was for their household. “Every single journey back again and forth to the healthcare facility was scary because we realized that we have been dropping her.”

At last in December 2015, just right before Xmas, Kyree underwent a quadruple organ transplant to obtain a new liver, pancreas and compact and huge intestines.

Posted by Kyree’s Aspiration Team on  Wednesday, December 16, 2015

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“If she hadn’t gotten the transplant, she would not be in this article at 13 years previous and smiling,” said Nan Beachem. “She could lastly go to the beach front without having stressing about acquiring sand all-around the dressing. It opened up a full environment to her.”

Though Kyree’s transplant was successful and issues ended up going properly for a couple of years, she’s presently enduring organ rejection once more.

Extra: How one particular mother fought to transform an organ transplant coverage to help save her daughter’s life

She’ll also be on medicine her total existence. Among the other issues, she’s using a minimal-dose steroid that’s induced her encounter to swell. Once in a while, her conditions have to have her to be hospitalized.

Still via it all, Kyree carries on to stay positive. Throughout her medical center visits, she’s explained by healthcare facility staff as sweet, kind, charming and sassy.

Posted by Kyree’s Aspiration Crew on  Wednesday, July 29, 2020

“Kyree is just one of the most remarkable little women I have ever met,” said Kory Antonacci, CEAT program coordinator at UPMC Children’s Medical center of Pittsburgh. “She really lights up the place the minute she walks in.”

“She is the client that even if the nurses are not assigned to her, they will go and go to with her since they love her so a great deal,” included Stace Cote, unit director of the 7B Transplant Intestinal Care Device at UPMC Children’s Healthcare facility of Pittsburgh.

Due to the fact of the impression that healthcare facility team and medical practitioners have designed on her everyday living, Kyree mentioned she hopes to abide by in their footsteps and turn into a nurse just one day, to assist other folks in need to have.

“If people today are crying or unhappy or they’re not sensation great, I attempt to smile to make them truly feel superior,” mentioned Kyree. “And persons say that tends to make their day from time to time.”

More: 17-yr-previous will get ‘Christmas miracle’ with new heart and kidney

Since of her good spirit, “GMA’s” TJ Holmes surprised Kyree with a Halloween bash for the duration of what she imagined was a routine “virtual” appointment with her doctor from the medical center.

Her most loved singer, Kelsea Ballerini, also popped in to provide a distinctive message.

Posted by Kyree’s Desire Workforce on  Thursday, June 21, 2018

“It is been eternally since I’ve seen you and I hope you’re carrying out nicely,” Ballerini told the 13-year-previous. “I’m constantly imagining of you and wishing you very well and your sweet mama, give her a hug for me. I am just sending you so a lot like, and hopefully I will get to see you tremendous quickly.”

Kyree responded to the big shock Friday, stay on “GMA.”

“I love it,” she mentioned via movie chat. “Thank you.”

“GMA” also shocked all 300 youngsters in the healthcare facility with a present card in Kyree’s honor, because it’s Kyree’s desire that each individual one kid in the medical center can appreciate the holiday period.

Nestle was so inspired by Kyree’s story that the business also gifted the clinic $15,000.

13-yr-previous female born with rare intestinal condition is stunned with Halloween bash initially appeared on goodmorningamerica.com

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